Sampson Gordon Berns (October 23, 1996 – January 10, 2014) was an American activist with progeria, an extremely rare and fatal disease that causes the body to age rapidly. Berns helped raise awareness about the disease and he was the subject of the HBO documentary Life According to Sam, which was first screened in January 2013. His parents, Scott Berns and Leslie Gordon, both pediatricians, received their son's diagnosis when he was less than two years old. Roughly a year later, they established the Progeria Research Foundation in an effort to increase awareness of the condition, to promote research into the underlying causes of and possible treatments for the disease. Moreover, they offer resources for the support of those with progeria and their families. More information...
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